Unique, Understanding Chromosome Disorders

Description Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them. Established in 1984. Membership of Unique is free but the group receives no government funding and is heavily reliant on donations and fundraising to continue its work.

Unique, offers contact with families with an affected member who has the same rare chromosome disorder or, who has similar symptoms or practical concerns, irrespective of specific chromosome disorder. It produces a comprehensive range of family friendly, medically verified information guides on a variety of rare chromosome disorders. Unique coordinates families to assist in research and has password-protected discussion forums for registered members, it also has social networking sites on facebook, twitter, etc. It publishes a magazine three times a year. Unique hosts occasional study and family conference weekends. Unique has over 13,000 affected families and many relevant professionals as members worldwide in over 100 countries. A network of local contacts worldwide promote awareness of chromosome disorders and Unique to the general public and professionals
Contact name Beverley Searle
Cheif Executive
Contact address G1 The Stables, Station Road West, Oxted, RH8 9EE
Contact telephone 01883 723356
Organisation e-mail info@rarechromo.org
National website http://www.rarechromo.co.uk/
Organisation type Voluntary
Record updated 25-04-2016

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