The Down Syndrome Act

Down Syndrome Act 2022

The Down Syndrome Act 2022 is UK legislation requiring key services, health, social care, education, housing, and youth justice, to take account of the specific needs of people with Down Syndrome when performing their duties.

Statutory Guidance (Draft)

Draft statutory guidance was issued in November 2025 and is subject to public consultation until 28 January 2026. Once finalised, all local authorities and Integrated Care Boards must have due regard to this guidance.

Read more about the draft statutory guidance.

Collaborative working in Bromley

In Bromley our work towards improving the outcomes and life chances for children and young people with Down Syndrome forms a part of our annual SEND Action Plan.  This plan and our actions towards it are overseen and scrutinised by the Bromley SEND Governance Board.

Our education, health, social care colleagues are proud to be partnered with the Bromley Down Syndrome Support Group (BDSSG) working collaboratively in developing a Down Syndrome pathway. The pathway is awaiting further review to reflect the finalised statutory guidance. 

The BDSSG supports people with Down Syndrome, and their families, living within the Borough of Bromley and who use services within the Borough. 

More information is available on their website; www.bromleydssg.co.uk.

Development and Learning

Children with Down Syndrome will have differing abilities and needs across development areas - motor, social, communication, cognition and self-help.

Children with Down Syndrome have many strengths including strong visual awareness and learning skills, the ability to learn using the written word and a strong desire to learn from and imitate peers and take their cue from them. Children with Down Syndrome will however need support and appropriate interventions in school - to overcome possible barriers to learning and inclusion. These barriers include delayed motor skills, expressive language delay, short term auditory memory and sensory impairment. This profile of learning is often referred to as a specific learning profile.

Each child is unique and different, and teachers must seek to identify individual strengths and barriers to learning - only then can learning and support be appropriately differentiated.

It is important that education providers are aware of the learning profile of the children and young people so that they can support them to make both academic and holistic progress.

Training for Early Years Settings and Schools

The SEND outreach team has developed two training packages for Early Years Settings and Schools that relate directly to the specific learning profile of children and young people with Down Syndrome and the development of reading skills.

This training is available, through the SEN Advisory team to all early years settings, schools and colleges wishing to build confidence and understanding in supporting the needs of children with Down Syndrome.

Social Care support for children and young people with Down Syndrome

There are a wide range of universal, targeted and specialist services for children and young people with Special Educational Needs and Disabilities. Many of which will be appropriate for those who have Down Syndrome. We suggest contacting the provider or discussion with the 0-25 service as to what will be the most appropriate.

If further support other than universal and targeted services is required, please consider an application via the Short Break On-line assessment or contacting the 0-25 service directly to discuss a Children and Family assessment being completed.

Bromley short breaks has further information and contact details for the 0-25 disabilities service.

Further support, information and resources